Tuesday, September 13, 2022

I'm rapidly approaching 10 years cancer free!

It looks like I forgot to post this from March 8th 2022.  Go figure.


It still boggles my mind when I think about it.  I just doesn't seem like it has been long enough for me to be almost 10 years cancer free.  I think I need to plan a party or something for that day or do something to mark that date.  I'll think about it.

So lets recap the fall of 2012.  It was a beautiful fall day on Saturday September 29th.  I was with my co-workers at the Innsbrook Corporate Games and we were kicking some corporate ass in goofy races.  It wa a lot of fun, but I digress, I had just lost quite a bit of weight and I could feel a fair sized lump in my right arm.  This lump was just above where I had a previous Melanoma removed about 2.5 years earlier.  

I had a friend and co-worker check it to make sure I wasn't just imagining it.  The look in her eyes said it all.  The following Monday I called the office of my Surgical Oncologist.  He was on vacation.  They gave me an appointment 3 weeks out.  I basically cried on his secretaries ear until she got me in as soon as he got back.  

I was shoehorned between patients October 3rd.  He took one look at my arm and said I couldn't leave until the pathology folks came down to get a sample.  At this point we both knew what it was.  It took Pathology about 45 minutes, I think, to come see me.  This was a fine needle aspiration, which means they take a needle attached to a syringe and they try to pull back on the syringe with a little gun while stabbing you in the arm 100 times.  It wasn't bad until they poked all the way through the tumor.  That hurt like hell.  They take the tissue and smear it on a slide and dye it to see what it looks like.  I am still kicking myself that I didn't ask to take a look in the microscope.  So I went back to work and waited for the call.  My arm was producing quite the impressive bruise and it hadn't even been an hour.

About two hours after I got back to the office, I got the call from Dr. Neifeld.  It was in fact, melanoma.  This time it was a tumor about 1" in diameter.  He wanted me to come in the following week to get scans  scheduled.

I got off of the phone with my Dr. and called home.  Mom said she would be on the next plane out.  I tried to argue that we didn't know enough as my Dr. wanted a scan before scheduling surgery.  Dad told me to shut up and that Mom would see me Friday.  

True to my parents word, I picked up Mom at the airport late Friday afternoon.  I packed her and my dog Abby up and we headed north to Maryland to see some friends.  It was a nice break before things got real and Cancery.  You can look back at my first post from 2013 for further review.


Today the folks from Massey Cancer center came to my office to interview me as a former clinical trial participant who is still kicking ass and doing really quite well.  It was not the most comfortable thing to have a camera pointed at me while recounting my cancer journey.  I'm just not an in front of a camera kind of person.  Anyway, we had a very nice chat with me stuttering the whole time, (what can I say, I get nervous, I stutter,) then they took a few pictures with me at my computer working and grabbing drawings from the printer.  They took video of some paintings.  I hope the edit out the bulk of my stuttering.  The camera man was tickled to see my Fuck Cancer Cross stitch framed on my cube wall.  Thank you Gabriella!  I still get a warm feeling every time I look at it.   Then I say "Fuck Cancer!," and laugh.  It is still my mantra.



Bad Gallbladder! You have been evicted!

I forgot to post this last year.  Given that it has been almost a year, I thought I would catch you up.  October 19th 2021 I started feeling nauseated.  It got worse.  I ended up in the hospital and it was one cluster after another.  I ended up having to write a letter to make sure this didn't happen to anyone else.  While Massey Cancer Center is attached to the Medical College of Virginia, the quality of care is significantly different.  My time at Massey was exceptional.  Everyone I dealt with was a gift.  Everyone was compassionate and the standard of care is remarkably high.  This was not the case when my gallbladder decided it hated me and tried to kill me.  Below is my letter to the PTB at MCV.  Items enclosed by (parentheses) have been added for clarity. 


To whom it may concern,

Following is a timeline of my ER visit and stay with VCU Health due to the death of my Gallbladder.  (A moment of silence please.)

Tuesday evening October 19th, 2021 I started feeling queasy.  My stomach was upset so I went to bed thinking it would get better.  At about 3:30 Wednesday morning I started vomiting.  I thought this would be the end of it but I was wrong.  The Nausea did not abate.  I was still vomiting at 1 in the afternoon.  I texted my PA and called my GP to see if I should to go the ER.  Both recommended I seek medical help at the ER.  I drove to MCV and ended up having to go to Valet parking as the parking deck was full.  I walked to the ER and checked in at around 1:45pm.  I was still nauseated I sat for about 45 minutes before I got called back for triage.  Basically, the nurse asked questions on my condition, took BP, Temp and blood O2 levels, put me in a wheelchair and sat me back in the waiting room.  By 2:30 I was asking for a blanket as I was so cold, I was shivering.  At some time in here I needed to visit the lady’s room as I am not comfortable vomiting in front of people.  When I got back, my wheelchair had been confiscated by some woman who thought she was better deserving of said wheeled device.  By 3:00 I informed the front desk that I wasn’t sure I’d be able to remain conscious.  They informed me that I would just have to try.  I may have requested another blanket at this time as well.  (I was in and out and my memory is fuzzy.)

Somewhere in here I asked if I should try another ER.  I was informed that every ER in the city was backed up.  I later found out this was not the least bit correct and was in fact bordering on a bald-faced lie.  Most other ERs in the city had a maximum 10–15-minute wait time.  I know this because I had two friends who went to various ERs in town and were in, treated, and out in about an hour.  VCU just didn’t want to get dinged by my leaving without being seen.  Apparently, this is really bad for an Emergency Room’s rating.

Around 5:30 or 6:00 I think, I may have been called back to the ER.  ER summary says 5:25 so I’m in the ballpark.  I was sort of in and out by this time.  I asked for more blankets because I was still freaking cold.  They started an IV, as I was severely dehydrated, and took blood for labs. 

I think it was probably around 7:00 or so and I tried to give a urine sample but dropped the cup.  I wasn’t terribly steady but better than when I initially came in.  After another bag of fluids, I was finally successful at giving a urine sample without dropping it.

My white count was apparently quite high so they sent me back for a CT scan around 8:30 or 9:00, (I think.)  After I got back from the scan, I laid around in my cubby for a while, then I was told sometime around 10:00 I’d be getting a sonagram as the Surgeons wanted a clearer image of my gallbladder.  I believe this was the first time I recall hearing my gallbladder was the culprit of my illness. 

The sonagram person showed up immediately and took pictures of my gut.  She wasn’t allowed to discuss anything so I told her what I could read from her face.   She kept her mask up pretty well. 

I think I was again in and out for a while.  I was informed that that part of the ER closed at 11:00 and I would be taken back to the other part of the ER that remains open.  I was wheeled back to a fishbowl type room with curtains.  It was delightfully quiet and they turned the lights off.  I think I dosed for a bit.  What bliss.  Zofran is my friend.

It was once I was back there that the surgery residents came in to speak with me about removing my gallbladder.  They discussed laparoscopic surgery and the slight possibility it’ll require cutting me open further if things aren’t great.  I was thinking with my luck, it’ll be the latter option.  I think I dosed a bit more as folks continued to monitor my BP and vitals.

Somewhere around 12:30 or 1:00am I was told a bed had opened up and that I would be staying until my surgery. 

I do have to say that once I was back in the ER being evaluated and hydrated everyone was exceptional.  The ER wait time however, was beyond ridiculous.  While I understand that the policy is to take everyone no matter what and that it was considered fair to see everyone in the order they came in, I was severely infected and dehydrated at this point.  The wait time is unacceptable.  I will not in future be going back to the ER at MCV unless I’m in an ambulance and unconscious.  If I have to drive an additional 40 minutes to get to a hospital with a more reasonable wait time, I will.  Triage should be used as a way to determine who is in the worst shape to be seen.  This doesn’t appear to be terribly effective.  After an hour or so, someone should have rechecked people to make sure they hadn’t gotten worse.

If a patient isn’t screaming in pain no appears to care much.

Main 9 – Rm 246

I was interred in Rm 246 sometime after 1am I think.  I never met my roommate but she was quite broken and in a very bad way.  I was told she had been in a car accident and had broken back and ribs.  She had the TV on all night and day, I’m not sure if she noticed it was on.  If my IV went off creating an alarm she complained.  Thursday, they removed her trachea tube.  Thursday evening, she was taking a turn for the worse.  It sounded like she was aspirating in her sleep.  I called the nurse and asked her to look in on my roommate as she was didn’t sound good.  They had a peak and didn’t stay very long.  A while later I again ended up having to call the nurse as my roommate was aspirating worse than before.  They came in and worked on her for about half an hour and ended up taking her to a critical care ward.  They even thanked me for alerting them to her condition.  That poor woman could have died.  I really felt bad for her. 

I waited all day Thursday for surgery but they couldn’t fit me in.  I was scheduled Friday morning but as soon as they were getting ready to wheel me down, they got a call and I got bumped.  I think I managed to get in for surgery around 11:00 Friday?  I was informed that they would try laparoscopic surgery first.  My suspicion was this was a pipe dream since I’d been so horribly infected this whole time.  I’m pretty sure I put a big damn dent in their bags of IV antibiotics.  After waiting several days, I think my gallbladder was toast.  As expected, it was worse than they thought.  The surgeon later informed me that he had not seen a gallbladder this bad before.  They weren’t able to take it all as there wasn’t clear delineation between the gallbladder and liver, and they didn’t want to cut the wrong thing and kill me. 

It must be said I felt significantly better once the bulk of the diseased tissue was gone.  Once I was back in my room I got better fairly quickly.  They kept me on IV antibiotics to be sure all of the infection was gone.  I think it took a few days for my bloodwork to come back clear of infection.  Once I had to get up and go to the bathroom, I started walking the ward.  The first few times I was pretty pathetic, but I kept it up.  I had a love/hate relationship with the spirometer.  I was always easier after a walk.

Mary came to see me Saturday.  I managed to get a bed swab down which wasn’t as good as a real shower but it did help me feel a bit better.  I was finally awake enough to look around a bit.  Mary and I noted that my room was quite a mess.  The room hadn’t been cleaned since I arrived other than changing out tenants on the other side of the curtain.  Once I was up and about, I began to see just how filthy the floors were.  (I wish I had taken photos, there were dust critters floating around the corners and spots of dirt stuck to the floor.  Mary changed the linens while I went to the bathroom and set the dirty sheets in the chair as the linen bin was overflowing.)  We found a previous tenants’ personal items in the drawers in the bedside table.  There were bits of plastic flotsam on the floor to include an old straw, two bottles of protein shakes and all of the plastic detritus that gets ripped off of IV’s and related pieces and parts.  I asked for a broom so I could at least sweep up a bit.  They sent someone in to clean up but they still only did a marginal job.  The linens & trash hadn’t been taken out since I had gotten there.  The nurse aid came in and emptied them when we asked Saturday.  The floors had not been mopped at all in the time I was there.  The bathroom was not cleaned while I was there either.  You could see where drops of water had fallen to the floor, collected dirt and dried on the floor.  It was truly disgusting.  

(Mary came back Sunday to visit.  The dirty linens were still sitting in the chair.  We had a chat with the charge nurse.  She came in to see how bad it was.  The dirty linens were removed as was the overflowing trash can.  Someone came in to sweep but the floors were still not clean.  I was still walking around the ward.  I walked with another patient a few times.  I waved at my car in the parking lot.)

They continued monitoring me through Sunday and released me Monday afternoon.  I did strip the bed before I left.  I also cleared out the bedside table and drawers.  I tossed everything that I wouldn’t be taking home.  I figured that is the only way to be sure the room didn’t have unwanted stuff hidden somewhere when a new patient came in.

While there are a lot of talented people working at MCV, it should never get dirty enough that people can see all of the yuck on the floor.  Linen bags and trash should be removed daily.  Floors and surfaces should be cleaned daily.  Bathrooms should be cleaned daily.  I’m not sure what is going on, but patients should not be staying in rooms where dirt and detritus can be seen on the floors.  I saw one man cleaning the corridor floor with a scrubbing machine on Saturday.  I have no idea if he did the whole corridor as I didn’t hear him come down my end of the hallway. 

No hospital ward should ever get this dirty.

Thank you for your time,

Brenda L Kliesen

CC: Aetna Insurance, VCU Health Patient Advocate, Chief Executive Officer Ralph R, Clark, III, MD.  Survey Processing Company Press Ganey.


Yeah, I pretty much copied this and sent it to everyone I could think of.  It did get some attention.  The patient advocate called me a day or two later and we had a nice chat.  I'm pretty sure there was a meeting with the ER staff, the head nurse on the ward, and the cleaning company.  I suspect strong words were used.  My bill disappeared.  It is my hope that no other patient has this experience in this hospital.  

Since all of this occurred, my gut has been unhappy.  Not nauseated or anything like that.  I can no longer process certain foods which flow through my system at a speed hitherto unknown.  I had no idea things could move so quickly.  One cannot blissfully ignore the gastric system as an unfortunate even could occur without much notice.  I now take my headphones on a walk to the restroom during conference calls while muted.  They'll just have to wait for me to unmute when I get back to my desk.  I can still listen.  If I am driving, I have to know where the restrooms are and how far away they are.  If on the highway, I take an emergency bathroom kit.  I also don't eat before driving long distance.  Fluids are not a problem.  I just try to avoid overly glutenous or fatty foods as much as possible.  

Take good care of  your gallbladders folks!  They can really mess up your day.