I do love my Dr. & his sense of humor. We had a lovely exchange Monday morning. His sense of humor only goes so far though. I am scheduled for an MRI of my brain tomorrow morning. I had a whopper of a headache yesterday, it kept me home from work. That got them worrying along with the dizzy spells, hence the MRI. I’ll have yet more proof that I do in fact have a brain – Yay! Though it has been confirmed in several scans thus far, it is always nice to have confirmed again, and again.
I had a few really good weeks, meaning
low side effects. Then over the weekend I started having dizzy
spells. This isn’t normal for me unless I have some kind of inner ear
thing going on, so I mentioned it to my Dr. They say laughter is the
best medicine, I tend to agree with that notion, thankfully so do my medical
providers. We try to joke when we meet. Monday they said I looked pale so they gave me a Liter of
fluids while I waited for my treatment. I tried to drink water yesterday,
I probably still didn’t drink enough. Hell, I was in the bathroom half of
the day so maybe I did get enough.
Monday’s treatment was a little
rough. I hadn’t had the full gambit of side effects since May so it was a
bit of a surprise when the chills started. The fever hit around 11:30 or
so but it only went as high as 101.4oF. I texted in my temp
anyway. My nurse likes to get texts from me when exciting things happen.Work has been incredibly supportive of my treatment thus far, thank heaven! They are working to make sure I don’t do overtime. Honestly I don’t think I’ve put in a full 40 in months. I try to work extra on Tuesday & Thursdays to make up some of the time, but my energy hasn’t been up enough to do so. I imagine I’ll be using the rest of my vacation time to finish out treatment. It’ll suck, but that’s life. Here’s hoping I won’t have any more crazy side effects showing up for the next 5.5 months. I’m going to take my lesson in all of this as: don’t get cancer – again!
Other than that, I think I’m doing pretty well. I’m still
sporting no hair, though it needs trimmed. I’ve spent the last few weeks
feeling incredibly lazy and it is about 3/16” long. I still look foxy
fine! Yeah, that might be a bit of an over statement, but I feel pretty
good about my lack of hair. I managed to find a nice & inexpensive
pair of big gold hoop earrings to go with my lack of hair. Andrea sent me
the best soft fuzzy brown hat on the planet. It kind of makes me look
like I have hair. Maybe I’ll get a photo to include in this missive so
you can see how awesome I look. Feel free to give a good chuckle.
First time bald @ Irish festival with the Bergman family.
You know you have an awesome best friend when she shave’s her head with
you. I think we look fabulous!
I love this photo & think it needs to
go on my wall. Mary – Thoughts? That was an awesome day!
This
is with a smidgen of hair. I’m not usually photogenic so forgive the
face. Yes, I do need to trim my hair back down to the scalp. I
really like the no hair look & it is so freakin easy. A small bottle
of shampoo lasts & lasts. Yes, I need a trim.
Further updates since I wrote the above
missive.. I was denied treatment today
as they are concerned about toxicity.
They want to see what is up with the MRI tomorrow, then we will resume
treatment Friday, I hope. This means Friday’s
treatment will be full of SUCK! Having 3
days off can be painful. I’m hoping it
won’t be as painful as the 5 days off I had in May or the 5 days I'll have off for Labor Day. I tried to convince them to continue, but they said no. The dizzy thing was worrisome. My other nurse, Jane, said she would call me tomorrow, or have Dr. Pok call me tomorrow. Someone will call me tomorrow.
Ah well! Such is life I suppose. Now for a nap!Be well my friends,
blk
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